Just another day...not so bad

today has been alright...not hurting near as bad as i would be any other day...i have been concentrating on bellydancing most of the day which has got my mind off of the pain...i guess thats how it works today....the only thing that is hurting really bad today is my head....ehlers-danlos has changed my life dramatically because now i have answers as to why i am hurting all the time and other symptoms that i have had all my life...hopefully i will have the test results from my echo. monday or so.....a girl can hope right.....i really hope it comes out ok, im pretty sure it will but as of right now i am scared to death of what is gonna happen.....i was talking to my mom the other day about what i want to do with my future...i told her that i was going to have a carrer until the pain becomes so unbareable that i cant work anymore....i will have a family and friends...im not going to let all the problems that go along with eds put my life on hold....i refuse.....well i guess i better go....luv you guys and hold on another day with whatever problems you may have....Sarah

a new day

today is a sucky day...my sugar shot up really high today along with all the pain....i had to ride in the car most of the day which meant i couldnt move that much.....monday will probably be better because i get to exercise....i am still waiting on my test results which i hope will come back alright....anyways as bad as today has been my hands are hurting so im going to go ahead and get offline and go to bed so maybe tomorrow will be better.....luv you guys

Echo. Today

hi guys....i dont know how everyone elses day has been but i know mine has been crappy. I had to have an echocardiogram done today to make sure i didnt have micro valve prolapse, dont know the results yet but i will soon enough...I was so scared of what they were going to do but i ended up almost falling asleep. Every time i would dose off she would turn the volume up on the computer and my heartbeat kept me from falling asleep...everyone told me that there was nothing to worry about today but there is a little feeling in the back of me that keeps me from believing them...its one of the most scary feelings you can imagine not knowing for sure if your your heart could explode or anything else like that is really scary...I really just want to help people my age and/or younger understand that they are not alone and if they need someone to talk to, i really understand.....well thats my blog for today i may get back online later and give more updates and advice.....love yall

How it started...

hi guys...my name is sarah and i am 14 years old....for the past 2 years i have been hurting in my joints and other symtoms have gradually came along.....i have seen every kind of doctor that you would think about that would treat joints and never got any answers...for about 3 months i was in remission or so i call it and when the pain started again it was so unbearable i went to see a new rhumatologist who was amazing.....after 2 visits with him i was diagnosed with ehlers-danlos syndrom....that is about where i am in my life.....other than the pain and all of the other symtoms i am a normal teenager......well i will go...will have more news tomorrow....